Jen's daughter, Morgan, has Cystinosis, a rare genetic metabolic disease that affects approximately only 500 people in the United States. In patients with Cystinosis, the amino acid cystine gets trapped in all of the cells of the body, crystalize and cause early cell death. Over a period of years, cystine slowly destroys various organs in the body, including the kidneys, liver, muscles, and eyes.
Every year, Jen organizes and hosts Mulligans Fore Morgan, a charity golf tournament in honor of her daughter Morgan, benefiting the Cystinosis Research Foundation, the world's leading fund provider for research to improve treatments and find a cure for Cystinosis. In the past two years alone, her family has donated over $25,000 to this worthwhile cause.
The 3rd annual Mulligans Fore Morgan golf tournament will be held on Sunday, September 17th in Avon, OH. Visit www.cystinosisresearch.org/mulligans-fore-morgan to donate or register to join Jen and her family for a day of golf to support a great cause. Sponsorships and donations made to the Cystinosis Research Foundation are 100% tax deductible and every penny, every dollar goes directly to research. Questions? Contact Jen at (440) 342-7817.